Real Life Stories From a Disabled Mom | Guest Blogger Kieran O’Brien

Everyone has power. Trust me, I’m a mom, and most days I call upon some kind of superpower. Aboard my four-wheeled scooter, Beast, I go everywhere from my daughter’s school to work in NYC or to connect with my crip friends. At home in the burbs, Beast schleps me anywhere within a 10 to 15-mile radius based on how new my batteries are. I carry more than shopping bags. My oldest daughter sits by my feet to get to everything from ballet to scouts. I’m working out a new way to carry the baby without her reaching to “help” me steer.

When abled-bodies individuals see me out sans children and find out I’m a parent, they look at me, at the scooter, then back at me and just look confused. They ask, “How did that happen?” I reign my sarcasm in to avoid getting wildly inappropriate in a grocery store, hair salon, or coffee purveyor. (That’s not to say it hasn’t happened when caught on the right kind of day)

These exchanges come down to perception. Moms take care of people. Disabled people get taken care of. As a mom with Cerebral Palsy, I balance between the two narrow stereotypes.

I’m Kieran Bridget O’Brien Kern. Power is literally my middle name. When my husband and I became engaged, we agreed that parenthood was a two-person job. I am the primary caregiver to our children, but we all work as a team. From infancy onward, we have adapted and grown together. Every day there is a new challenge. Every new challenge is an opportunity to learn more about them and myself.

That doesn’t mean that I greet every or any challenge like a cartoon princess. Most days, I face challenges with neither a song in my heart nor a cadre of helpful woodland creatures around me but with strategy, creativity, and a lifetime of hacking just about everything I needed to do. There have been instant successes, hard-won successes and full-on failures, just like every other parent with or without disabilities. Disability is a part of me, just like my brown eyes, and freckles. It has helped shape my life. I spent my childhood through young adulthood wishing to be not be seen as a hero for existing or handling chronic pain and remember telling and advisor, “I don’t need them to see me as super, just as human.”

Having the right tech and a supportive environment makes the difference between having independence and not. After a decade of scooter use, I finally got the right wheels for me in 2000. GirlRacer was hunter green and dripped chrome. Her four-wheel stability enabled me to go anywhere from PT to the city independently for the first time in my life. Wheels make life possible.

In the same way, the right equipment and setup makes independent caregiving possible. That also includes everyone having their own definition of independence. With my own kids, there are tasks I do on my own, in tandem with another adult or with my older daughter, or I won’t do because I haven’t found a safe and successful solution. For those activities in the third category (or if I don’t have a backup for the second), there’s a workaround or a phone-a-friend.

Stereotypically, moms are expected to do everything. Using five times the energy of an able-bodied person on any given task, meaning, that I pick what I’m going to do and how I’m going to do it. Do my kids suffer because we adapt to save energy? No, saving energy means I have that much more to show up for them in meaningful ways. Reading books, having dance parties, soccer practice, bubble baths and bedtime songs. Disability is our normal, we don’t always do things the way other families do, but we don’t have to.

My recipes and crafts aren’t Insta-worthy and there won’t soft-focus lens shots of perfect parties. But if you want an honest, humorous look at parenting on the crip side. Come on in! There’s a wheelchair lift off the back.

source: Christopher & Dana Reeve Foundation

by Reeve Staff

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  105. Keep in mind that personal business loans have serious upside but also
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    need them, nevertheless they also can prove to be highly dangerous if misused, thus deal with these financing options and the
    lenders that supply them carefully in order to avoid falling to
    the trap of economic destruction. If any with the above occur, you happen to be left
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  106. As of the learn to our second decade of the twenty-first
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  107. Una carta a Zapatero a ver si le compra una flota de Seats para sus asesores será más fructuoso que sugerir en una página de Citroen C que compren un Exeo. Y hay un aspecto importante que no he leido en otros comentarios: el trato personal que dispensan en los talleres de la red Citroën no tiene parangón: cuando hay revisiones me llevan y me traen a buscar el coche, las revisiones las hacen en el dia, etc. No puedo estar más satisfecho de los concesionarios, al menos de los que he visitado.

  108. Considering the belief that fundamentals are in place to push gold to new highs, which include a persistantly expanding monetary base,
    fears about future inflation and uncertainty about the European debt crisis, one
    could think the run would continue. Note that only original equipment dealers can legally call
    a vehicle “certified used. In fact, more than a million satisfied customers have been served, including those that have less-than perfect credit scores, are already approved within 5 minutes and gained usage of at the most $700 these business day.

  109. Most of us should think outside of the box to change our assets into
    the more money that’s needed. With the above tips,
    you can surely produce a great deal of more income and food from your garden. The economic crunch has been felt around the globe and most people are
    looking to work while using opportunity they need to finance themselves.

  110. This program has been used by thousands of people with poor
    credit all over the world to acquire loans instantly.
    The term Commercial real estate involves selling properties which might be
    used mainly for commercial purposes. The first is where you can seek the ideal terms, and this can be influenced by whether your loans are private or
    federal.

  111. Online lenders, however, squeeze money right into your banking account.
    With the above tips, you’ll be able to surely produce
    a large amount of extra money and food directly from your garden. Getting
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  112. The artsy, crafty types will find particular opportunities within this arena, as a
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    a part-time profession. Note that only original equipment dealers can legally call an automobile “certified used. In fact, over a million satisfied customers happen to be served, including people that have less-than perfect fico scores, are actually approved within 5 minutes and gained entry to at the most $700 the following business day.

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  114. Disponemos de los mejores precios de Sevilla, precios realmente competitivos, con un servicio completo y adaptado a las últimas tecnologías. Como Servicio Técnico de electrodomésticos, ofrecemos servicio técnico de reparacion de electrodomesticos en Quijorna a domicilio, el que no se tenga que trasladar el electrodomestico a taller barata la reparación y conseguimos que el cliente pueda hacer uso de su electrodoméstico en el menor tiempo posible, casi siempre en el mismo dia.

  115. La climatización comprende el frio y el calor, las formas de climatizar un ambiente tanto en invierno como en verano son muchas y muy variadas, recurriendo a las calderas en invierno y al aire acondicionado en verano. La cuidad de Madrid no está acostumbrada a este calor sofocante, la gente de Madrid no sabe cómo combatir unas temperaturas tan extremas por lo que tendemos a abusar en el uso del aire acondicionado, de los ventiladores y del frigorífico para combatir este calor. El problema de abusar de los electrodomésticos es que estos sufren más y aumentan el consumo eléctrico. También es recomendable que una empresa de reparacion frigorificos nos realice una revisión cada cierto tiempo.

  116. So, securing approval despite low credit score is as much difficult for the kids
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  117. Creo que te hubiera salido mejor llevarlo a una de esas tiendas de Paquistaní y en estos momentos tendrías tú móvil en la mano, quien sabe a lo mejor te hubiera salido más barato que en bendito seguro ese, por lo menos no hubieras pasado la rabia que estás pasando por el mal servicio de esta empresa. Respondele que por ley todas las substituciones y reparaciones con un coste elevado le pertocan a ella, ya sean de la nevera del aire acondicionado incluso de las persianas.

  118. La mejor elección para la reparación de la avería de su electrodoméstico.Contamos con servicio técnico de reparación de electrodomésticos de todas las marcas y modelos. SERVICIO TÉCNICO, MANTENIMIENTOS, INSTALACIONES Y PRESUPUESTOS, VENTA DE EQUIPOS DE AIRE ACONDICIONADO. Pueden ofrecerle los mejores precios y el mejor servicio en Zaragoza, Huesca y Teruel.

  119. Antes de comprar el C. pasé por varios concesionarios de otras marcas, sobre todo alemanas, y en algunos me sentí ninguneado, concretamente en Mercedes y eso que estaba interesado en un CLS. De todas formas, yo también sabía sobre la respuesta de la suspensión hidroneumática de citroen ante un pinchazo en una rueda (no en dos a la vez). Menciono al mercedes no porque este a sueldo de algun poder oculto sino porque segun este mismo portal, en la prueba del C , escriben que solo este coche esta a la misma altura en confort de suspensión. Yo que soy usuario de C creo que en muchos de los comentarios se están haciendo brindis al sol.

  120. Se entenderán por Contratos de obra servicio determinado los que tengan por objeto la realización de una obra servicio, con autonomía y sustantividad propias dentro de la actividad de la empresa, concertados para cubrir aquellas tareas trabajos suficientemente diferenciados por el volumen adicional de trabajo que representan, cuya ejecución, aunque limitada en el tiempo, es en principio, de duración incierta.

  121. Disponemos de útiles de verificación in situ en las máquinas para poder verificar las piezas a pie de máquina y detener la mecanización en caso de que se haya detectado algún problema. Dependiendo del tipo de mecanizado, el movimiento lo hace la pieza lo lleva a cabo la herramienta.

  122. El mecanizado de precisión se utiliza en piezas de materiales como el acero, el bronce, el grafito, el vidrio y los plásticos, y dependiendo de cuáles sean estos materiales y del tamaño del proyecto, se usarán para el proceso varias herramientas, como tornos, fresadoras, sierras, taladros rectificadoras.

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